Wednesday, August 19, 2015

Wednesday Ramblings~

I'm sort of lost for a post at the moment, I guess because I have a lot going on right now and life is busy. We have a busy couple weeks coming up, exciting times. There is a wedding this Friday in the Martz family and then our daughter moves into her residence. We have 2 birthdays in October, a wedding and a Halloween party. SO that's awesome!



Little side note here, I am sitting here trying to blog and I am eavesdropping on Braden and his attendants. LOL...there is a new one here today supposedly being trained. I could tell within 2 minutes the new one and Braden wasn't mixing well together. Can I even begin to tell you how difficult it is for me too sit back, watch and listen to the exchanges that go on between the new help and Braden. Once I introduce them, I leave. Back in the day I would do all the training, they would ask me all the questions. Today, however when going through a government funded organization and Braden being an adult things have changed drastically. This service sends in their own staff to train their workers. In our situation the attendant who was going to train this new one has literally only had about 4 shifts here. Where on earth does someone think this training session is going to go anywhere. Let me tell you, I'm just not ok with that and quite frankly Braden isn't either. Honestly this poor new attendant had never even come close to doing some of the care things that Braden needs. When I think of what could be happening in there right now, its basically the blind leading the blind. I would love nothing more than to run in there and take over this situation...but I have to trust that Braden will handle it like an adult. If he needs reinforcements he'll come out and get me. Its taken me many years to be able to do what I am doing right now...sitting back and just waiting to be called upon.

Well as predicted, he politely escorted the "new" attendant out the door, lol!
He isn't too happy, so we just had a talk and I tried to explain that he was her first time ever client and she was probably just nervous. He thinks she talked to him like he had a "Mental" disability. I have to agree a little, when someone is uncomfortable with him and not sure what to do they tend to speak loudly and slowly at him. LOL....(Sorry Braden I am dying laughing right now!!)
Kailey was listening to her from her room and after the lady left she came upstairs and asked why she spoke to him like that? She was really upset, again I explained that when people are uncomfortable they tend too act that way. Poor Kailey says..."Jesus, if she wants to talk to someone who's mentally challenged meet me on the couch in 20 mins)...lol
What do I do? We get to this point in government services where we get frustrated and then just cancel. Its so much easier to just hire privately, but we do need to start mixing both worlds. Braden is entitled to services, he does qualify. It would be perfect if we could save some of Braden's money by incorporating funded services. Then we could use that saved money towards equipment and supplies.
Its not easy my friends, and to be honest we have it pretty darn good. My heart aches when I hear of others situations and circumstances. I cringe at some stories, so I am not trying to complain or sound like I am not thankful. I know we are lucky and fortunate to have the means to get Braden all the things he needs. When I say its hard, I just mean more emotionally...things related to the quality of his care. I have no idea how people in our community with disabilities can stay healthy and strong when their care providers and attendants don't have the proper education and training. I could go on and on around the topic of our government replacing nurses with "attendants" in community homes. I so struggle with that. If the day ever comes and I am no longer living close to Braden I made him agree to always have an RN on his health care team. He'll have to hire privately, maybe have that nurse in once a week to just go over things. I want someone who is highly qualified to always have their eyes on him, especially if I can't. Hopefully his sisters profession will lead into some form of medicine. At least then I will know she'll always make sure he is well taken care of. I also have to be thankful that 2 of his good friends are becoming nurses as well, and I pray they stay apart of Braden's life forever.
Fast forward about 7 hours, everyone is in bed and I am here finishing up this blog. Well the day ended on a happier note. I think I have Braden convinced to give this poor girl another chance. One more shot...that's all I ask. I do think in time, and once she relaxes the two of them will get along just fine. She's gonna have to come to terms with the fact that Braden is in charge, she is not the boss and will have to take a back seat in this house. I think that's one of the reasons why Braden didn't care much for her, she came in guns hot ready to rumble. She had a plan, she had her papers and all her ideas laid out. The only problem is...Braden wanted nothing to do with it.
Well my lovelies, I would love to keep rambling on this fine Wednesday but its bed time. I am tired, so until tomorrow good night and god bless~

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